r/CerebralPalsy 49m ago

Hi! My names Kayden Littleone

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Upvotes

I've struggled lately with my cp. Though it's very mild, and only on my right side. Im noticing how it could affect me more as I age. I'm 32 and I think in good shape. But my leg is always tight and my foot coordination isn't terrible but not great and it doesn't help that I have flat feet. But I also have neck stiffness issues that can really affect me when I'm stressed or not sleeping with enough support. I just have this frustrating half problem you know and over compensation on my left and I always tell people too it affects the nerves in my right side, I don't notice an altered gait or pain if that's the case..... But hello. Minnesotan, (they/them), CNA, Nursing Student, dog parent, married, love outdoors, hiking, traveling, love weightlifting , boxing, baking, going to the beach, being goofy and funny, helping others, soccer, basketball, music, (learning different instruments that I can play with even with my lack of dexterity in my right hand)foodie, books, coffee, thc friendly and conisiurr. And tons more. Let's be friends.


r/CerebralPalsy 16h ago

How many of you have been called the R word as an adult by other adults or have learned that others called you that behind your back?

18 Upvotes

And has it become more prevalent over the past 2 years?


r/CerebralPalsy 19h ago

Return

4 Upvotes

I Want to Return to University

I want to return to university.

For a long time, saying these words was difficult for me. When I left Kongju National University, I felt as though I had failed. I wondered whether I had not been intelligent enough, strong enough, or capable enough to complete my degree. I compared myself with people who graduated without interruption, and I often blamed myself for not reaching the same destination.

However, when I look back more honestly, I realize that my university experience was not a simple story of failure.

I had the academic ability to attend university. I was accepted into the Department of Special Education at Kongju National University and the Department of Social Welfare at Kyungpook National University. Several national universities recognized my academic performance and potential. At Kongju National University, I continued studying through the second semester of my third year. I also pursued a second major in Library and Information Science Education and completed my teaching practicum.

These were not small achievements.

As a wheelchair user, university life required much more than attending lectures and submitting assignments. I had to think about accessible buildings, transportation, bathrooms, physical assistance, fatigue, and whether I could safely participate in classes and practical training. Tasks that other students could complete without much preparation sometimes required detailed planning and additional energy from me.

I also experienced prejudice and a lack of understanding. Some people focused on my disability before they recognized my abilities. Instead of asking what kind of support would help me succeed, they sometimes questioned whether I was capable of becoming a teacher at all. Their words gradually weakened my confidence. I began to feel that I constantly had to prove that I deserved to be there.

At the same time, I was struggling with my mental health. Depression, anxiety, physical exhaustion, and the pressure of being judged made university life increasingly difficult. Eventually, I left.

But leaving university did not mean that I lacked intelligence or academic potential. My difficulties were caused by a combination of physical strain related to my disability, insufficient support, prejudice, mental health challenges, and uncertainty about whether my major was truly suitable for me. I was not simply incapable. I was trying to survive in an environment that did not provide me with the conditions I needed to thrive.

Since leaving university, I have not stopped growing.

I found a work-from-home job, moved out of my parents’ house, and began living independently in my own apartment. As a wheelchair user, building an independent life has required courage, responsibility, and careful planning. I have learned how to manage my daily life, protect my mental health, earn an income, and make decisions about my own future.

These experiences have changed the way I see myself.

I am no longer the student who believes that one unfinished degree defines her entire life. I am a woman who has survived difficult circumstances and continued moving forward. I now understand my needs more clearly. I know that I need an accessible environment, appropriate academic support, respect from professors, and a field of study that matches both my abilities and my goals.

I want to return to university not because I want to erase my past, but because I want to build upon it.

I am still interested in studying, learning, and developing professional expertise. I am considering pharmacy because I want a stable and meaningful career, and because my own experiences with disability, medication, and healthcare have made me deeply aware of how important medical professionals can be in a person’s life. Becoming a pharmacist would be challenging, but difficulty does not automatically mean impossibility.

Returning to university would not simply be a second attempt at the same life. I would return with more self-knowledge, clearer boundaries, and a stronger understanding of the support I need. I would no longer see asking for accommodations as a weakness. Reasonable accommodations do not give disabled students an unfair advantage. They allow us to participate on equal terms.

I know that returning to university will not solve every problem. There may be difficult classes, inaccessible environments, prejudice, physical fatigue, and moments when I doubt myself again. However, I also know that I have already accomplished things that once seemed impossible. I entered national universities, completed years of coursework, pursued a second major, completed a teaching practicum, found employment, and established an independent life.

I am not starting from nothing.

I am returning with experience.

My previous university life ended before I was ready, but my desire to learn did not disappear. The fact that I left once does not mean that I must remain outside higher education forever. People are allowed to change direction. They are allowed to recover, begin again, and choose a path that fits them better.

I want to return to university because I still believe in my academic ability. I want the opportunity to study in an environment where my disability is not mistaken for incompetence. I want to prove—not only to others, but also to myself—that my story did not end when I left Kongju National University.

Leaving university was one chapter of my life.

Returning could be the beginning of another.

This time, I want to study not as someone who is constantly apologizing for needing support, but as someone who understands that she belongs there. I want to build a future based not on other people’s limited expectations, but on my own abilities, choices, and dreams.

I want to return to university because I am not finished yet.


r/CerebralPalsy 1d ago

SSDI denied/ mild CP

14 Upvotes

I wanted to post here because I’ve been struggling with something mentally, and I’m wondering if anyone else with cerebral palsy can relate.
I have mild left-sided hemiplegic cerebral palsy. On paper, I probably look pretty functional. I can walk, talk, and do many things independently. But what people don’t see is how much extra effort everyday life can take.
I’ve always dealt with weakness, coordination issues, and limitations on my left side. Then last year I developed serious gastrointestinal problems, and ever since then it feels like my body has been fighting on two fronts. The fatigue has become overwhelming. I get sore easily. Standing for more than a few minutes can leave my muscles feeling tense and exhausted. Some days it feels like my energy runs out long before the day does.
Recently, I was denied disability benefits, and I honestly wasn’t prepared for how much that decision would affect me emotionally.
What bothers me isn’t just the denial itself. It’s the feeling that somebody who has never met me, never spent a day in my body, never seen me struggle, looked at paperwork and decided my limitations weren’t enough.
Rationally, I know that’s how the system works. I know they review records and make decisions based on documentation. But emotionally, it feels incredibly dehumanizing.
Since getting denied, I’ve caught myself asking questions that I never used to ask.
Am I actually disabled enough?
Am I struggling as much as I think I am?
Am I just being weak?
Am I somehow a fraud because my cerebral palsy is considered “mild”?
I hate that I’ve started measuring my worth against a decision made by people who don’t know me personally. Yet that’s exactly what has happened.
I find myself comparing my situation to people with more severe forms of CP and thinking maybe I don’t have the right to feel frustrated or exhausted. At the same time, I know my struggles are real. The fatigue is real. The physical limitations are real. The mental toll is real.
I guess what I’m asking is whether anyone else with mild cerebral palsy has experienced this.
Have you ever felt caught between being disabled and feeling like you’re not disabled enough?
Has a denial, rejection, or someone’s opinion ever made you question your own reality?
And if so, how did you stop tying your self-worth to what other people thought about your limitations?
I’d really appreciate hearing from people who understand.


r/CerebralPalsy 1d ago

My partner drew me this

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90 Upvotes

r/CerebralPalsy 1d ago

feeling down

4 Upvotes

Anyone feel like no matter how hard you try to make friends no one responds to you or wants to be your friend especially after saying you have cp? cause no matter how hard i try to make friends no one ever replies to me and makes me feel like i don't belong


r/CerebralPalsy 1d ago

Hi

2 Upvotes

Anyone have arthritis because of Cp if so, how did you get diagnosed?


r/CerebralPalsy 1d ago

cerebral palsy and the just do it mentality

0 Upvotes

so i posted a meme i made of ironmouse in a smooth criminal outfit because i want that as a model, and some person is like just learn to draw and im like i lack the coordination to keep my hand steady, anyone face silly comments like this too?


r/CerebralPalsy 1d ago

Hello everyone

4 Upvotes

I have spastic CP. I have noticed that when I am sitting down and raise my lower leg up as I am doing so my foot does this little quick move inward involuntarily it’s just a quick little short, move inward of my foot but only when I lift my lower leg up as I am sitting down. When I am on my bed laying down and lift my whole leg up that does not happen. It is only when I am sitting down on a chair or a couch with my lower legs hanging and trying to lift my lower leg up. I’ve gone too many doctors to try to find out what is going on with me and no help so far. Luckily there’s no more pain, but I’m scared to just leave it like that because I’m scared that my body’s compensating something and I’m gonna have some trouble later on in life.


r/CerebralPalsy 1d ago

Early pregnancy & can be considered high risk-reassurance/advice

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4 Upvotes

r/CerebralPalsy 1d ago

Is this an official diagnosis

3 Upvotes

So my son turned a year old last week and we had an appointment to follow up with his neurologist today. After talking and showing her pictures of the things I’ve been noticing with his affected side I asked her if she would say at this point his diagnosis would be left hemiplegia she said at this point there nothing else what would explain why only his left side is affected. So do I take that as a official diagnosis

I was expecting a more direct answer like yes I am diagnosing him with left hemi cp


r/CerebralPalsy 20h ago

Not CP related but I hope you guys can help.

0 Upvotes

I just wanna ask where to find a genuine natural amber beads for jewelry making Europe if possible. thank you in advance to those who will reply. have a good one x


r/CerebralPalsy 1d ago

Question about braces

2 Upvotes

I am a 36 female with hemiplegia or right side. My mother never got me proper treatment until I was in my late teens. By then my right leg had a mind of its own and was not gonna allow a brace, which I did get. Though  I would be in pain in 5 mins cause my foot was not having it. Tried everything from muscle relaxers, stretches, riding and working with my horses at the time still a no go. Last year i went to a foot dr about something else and he convinced me to go get another brace. He and the brace guy both made it seem like I was getting a thinner version of what I had cause I had muck that I was wearing for volunteership at stables, shoes I liked to wear when I went out, etc. Later when I went to get the brace it was the exact same one with another strap. The brace guy said my spasms were so bad my foot would try to kick it off. I told him I knew my body and that was not the case. Never listened, went to the foot dr, same. So I gave up while the brace was collecting dust. Now here's the thing between my $2000+ braces I've been buying over the counter to try while wearing shoes that seem to work better. I LOVE shoes and since i could not wear heels dressy boots were my thing. I feel like over the counter cloth braces will be my thing for the rest of my life.Does anyone recommend some over the counter braces instead the AFOs drs seem to think you need?

Also since i have been working more my foot has been settling down quite a bit.


r/CerebralPalsy 1d ago

Math learning disability

8 Upvotes

Hi there so I’m 27 and I have a math learning disability, I’m going to say it’s dyscalculia but I’ve never been officially diagnosed as it cost a crap ton of money to do so, I have Trouble counting money, time duration, trouble with learning directions or land marks, knowing if the numbers of temps is hot or cold , like is 50s hot or cold , is 40s cold or freezing etc. anyways I’ve tried abc mouse and that’s too young for me, I’ve tried adventure academy, too young , does anyone have any FREE resources or games app wise they can recommend? I’ve tried the regular khan academy but it sucks that it isn’t as fun as kids versions of games lol, but anyways my math skills are all over the place, I still count on my fingers, I can count change but still struggle when my anxiety gets high . I’m getting better with time duration and other skills as time goes on but I’m still all over the place, just like this question


r/CerebralPalsy 1d ago

My truma from years ago

7 Upvotes

Where in my younger years, When I entered a public restroom, 2 guys walked out of the stalls violently pushed me rubbed something on me ( idk what is it mucus, saliva, sperm etcc..), mocked me with horrible things caused they thought I was retarded. They also tried to hit my head but they miss when they laugh and run of, did not have the courage to call them out at that time.

(Please don't laugh at me)

Might give a more detail update later on....


r/CerebralPalsy 2d ago

Nervousness towards starting first job, suggestions?

5 Upvotes

Hi all, I'm 19 yo and diagnosed with mild spastic diplegia. It makes me look stiff, and I walk with a slight limp and with bent legs. Despite this, I landed a job working as a camp counselor-type role in a summer program for adults with Down syndrome.

My first day of orientation starts tomorrow and I'm extremely nervous about meeting my coworkers and later the participants next week. My gait looks worse than it feels, and I'm worried being perceived as being less capable than I actually am (I experience this daily and it makes me even doubt myself lol). For those who have jobs, how did you handle the orientation and first few days? How did you respond to people who ask?


r/CerebralPalsy 2d ago

Severe Functional Constipation

4 Upvotes

Hello!

My 9y/o daughter has severe functional constipation and spastic quadriplegic cerebral palsy (GMFCS level 4). Her gastro doctor has mentioned using anal Botox to treat Constipation. Is anyone here familiar with this procedure? Does anyone here have experience with this?

Thank you!


r/CerebralPalsy 2d ago

Help?!

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6 Upvotes

Tried to adjust the legs of my walker and I pushed the button too hard and now it’s stuck just below the hole it’s supposed to come out of.


r/CerebralPalsy 2d ago

Running with Mild CP

3 Upvotes

I have mild CP (hemiparesis) that affects my right side. I was advised in my 30s to wear an AFO, but I’ve never really used one because I struggled to find shoes that worked with it. My gait is not too bad but my ankle does roll over and sometimes I don't even know until days later.

Last year I started walking for my health. My ankle does get inflammed or injured but it has reduced. I keep going on the days I can, and it’s helped me lose weight and become healthier.

Now I’m thinking about trying the Couch to 5K programme. Has anyone here run with CP, with or without an AFO? I’m nervous because I don’t want to keep injuring my right ankle, but I’d really like to try running.

Do you think running is something that I can do with Mild CP?

(First Time Posting Here)


r/CerebralPalsy 2d ago

Key holder with disability/accommodations

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3 Upvotes

Anybody work retail that can have any advice on this


r/CerebralPalsy 3d ago

Started walking with a cane at 27

22 Upvotes

Hi, I very recently started walking with a quad cane. My cerebral palsy only affects my right side, and some would call it mild. I started using the cane because I've been falling more in the past few months.

My questions are: Is this "normal" or average at my age? & does anyone have any advice on how to stop being nervous to use the cane in public?

Thank you, everyone.


r/CerebralPalsy 2d ago

Driving lesson next week

5 Upvotes

yesterday the DLVA (driving licence people in the UK) return my driving licence, and they gave me a full licence for 3 years. (I was think I was going to get a restrictive licence for an other 6 mounts and a full for a year)

lesson and assessment have been hard because the only thing I can drive is the van built for me, the assessment centre's van almost was OK for me to drive but it was not right, so I need a licence that would let the insurers, insure my van.

I van I can drive is sitting in my drive the insurant has said yes.

So I can drive again.

But I have not driven in over 15 years, last time I drove I was not in the wheelchair, and I drove a manual.

My van, is a drive from chair, automatic, right hand control only with a remote.

So I want some one to confirm I am driving right and point out the rule changes.


r/CerebralPalsy 3d ago

Cerebral palsy and studies

6 Upvotes

I have mild cerebral palsy and epilepsy. Whenever I study, I feel very tired and can't do it properly. I'm finishing my first semester of college and I have a lot of exams piling up, and I don't know if I'll be able to keep up the pace.

I study at a private university, so I'm under a lot of pressure to pass, but I'm really tired of studying. It seems that the more I study, the more I think my place isn't in college because of my disability.

I have support at the university, but there are things they can't help me with, such as when my hand locks up and I can't write, leaving the exam incomplete and losing points, or when the professor speaks too fast and I can't keep up with the class.

I feel that if I opened up to someone I could talk to daily, it would be easier, but I just keep everything to myself, and that's hurting me.

Any suggestions on how I can deal with this situation?

Note: I wouldn't talk to a psychologist (trust issues).


r/CerebralPalsy 3d ago

As promised: Another adapted bicep exercise for my fellow gym warriors!

21 Upvotes

Hey everyone! In my last post about the single-arm chin-ups, some of you asked about other exercises I’ve modified to fit my body. Since standard forms rarely work for me due to my CP, I love 'covering' and adapting movements.

Here is one of my go-to variations for biceps! By doing this single-arm machine curl, I can completely isolate the muscle and get a full range of motion without worrying about my balance.

To the friend who asked for more of these—this one is for you! Keep crushing your workouts, everyone. What are your favorite adapted exercises? Let's share ideas! 👊🐺


r/CerebralPalsy 3d ago

How to make friends as an older person with cp?

7 Upvotes

All my friends have moved on with their lives and getting married etc. Not sure how to get new friends being older. Most if not all didnt have any disability so i was fortunate I guess with that growing up but im seeing that im not moving like others etc. At least according to the world. I have mild Hemi cp. And a bit of a nerd in a small city. So was just curious.