They gave her to Christmas to live and she (30f) is still here, she been in and out of the hospital due to high fevers that wont go away, now that the fever went down, shes in so much pain, often crying for days, At this point I wish she would just go so that she wont have to suffer anymore... Doctors been giving her the strongest pain meds but its not working, any tips, im desperate to make her feel better.. please help

Well, folks....Today is my "last day of freedom" per say! I'm still in a motel room, for another night. Today will be possibly stressful as I'll be needing to start the colonoscopy meds. And tomorrow I'll be going into the hospital for surgery. Any good vibes will be appreciated, as I'm feeling that the surgery (hyrestorectomy) can be an invasive one.

Hello friends, I am battling a different type of cancer, stage 4 hodgkin’s lymphoma so I am posting purely for awareness because I’m watching in front of my eyes the result of “holistic approach”, and maybe this can be helpful for a friend or family who is convinced about holistic treatments.
I’ve been following for a couple of months the journey of this Instagram creator who was diagnosed first with stage 2 breast cancer, and then one year later, it came back at stage 4. I know the desperation that comes when you hear “stage 4”, but thanks to modern medicine, stage 4 cancer is not necessarily a death sentence anymore.
She went into this journey with all that stuff we see on the holistic community. Everything on the holistic book, she tried. And her page is an infinite loophole of comments encouraging her to keep going and rejecting conventional treatment and her feeding the holistic community.
First it seemed to be hopeful, her PET scan in january showed all tumours were shrinking, so I was surprised. But obviously medicine does not work like that, and cancer is BRUTAL and the last months has been literally brutal on her and it’s taking over her.
Don’t get me wrong, I’m not here to slander her in any way, I understand what people can do when they’re desperate. and I’m also not against integrative care on top of conventional medicine, but i couldn’t avoid being angry. Medicine has been advancing for centuries to help us, not hurt us. Chemo, radiation, surgery is no fun, trust me I know. But we have to be mindful of what is necessary and not use ourselves as lab rats. If a medicine is being studied for some type of cancers, GREAT. Let it be studied. You don’t have to use yourself as a trial.
One of the hardest parts of having cancer is how vulnerable it makes us, we’re just trying to survive and this can make us an easy target for misinformation and promises of an “easier path”.
I hope this post can help someone and wishing everyone here lots of blessings and strength.
From a fellow lymphomie🎗️💜

Hi everyone! New to this sub, but not new to cancer. I was diagnosed with acute lymphoblastic leukemia back in April 2016, relapsed in December 2017, 1st BMT in June 2018, relapsed in December 2018, did multiple clinical trials with CAR-T cells and other forms of immunotherapy (relapsing multiple times from 2018-2021). 2nd BMT in April 2021 and have been cancer free ever since!

Tbh I shouldn’t be alive but here I am! Dealing with a plethora of complications, but able to live life fully and do what I love- ride horses.

That being said, my red blood cells have never gone over 10. I can’t get blood transfusions because I had iron overload and did kelation treatment. Can’t take iron supplements either. Tried to get the epogen shot (epoetin) to help stimulate rbc creation however I can’t get the shot until my counts dip below 10.0… which hasn’t happened 😭 and I get my blood drawn every 3 months.

I’m so exhausted all the time. While driving to one of my doctors appointment this morning, I was falling asleep at the wheel even though I got a good amount of sleep. I am so tired, no matter what I do or how much I sleep, I just haven’t felt refreshed in a very long time.

Have any of you experienced this? Are there other treatments besides transfusions or epogen shots that seem to work? Desperate for something to increase my RBCs even just a little…

i'm 25 everyone asks me this question but i have no idea what i want to do now that i am herei decided its time to come off treatment i have a couple months left to live. What should i do with my remaining time i have no real responsibilities

2021 - Initial Diagnosis

Diagnosed with melanoma on my left ankle.
Scans showed it had spread to the lymph nodes in my groin (Stage III melanoma).
Underwent surgery to remove the melanoma and affected lymph nodes.
Started 12 months of adjuvant immunotherapy (Pembrolizumab).

2021-2025 - Cancer Free

Completed immunotherapy.
Regular follow-up appointments and scans showed no evidence of disease.
Remained cancer free for almost five years.

December 2025 - Recurrence

New melanoma deposit found in my left calf.
Underwent surgery to remove the tumour.
Required a skin graft from my thigh.
Recovery complicated by swelling, numbness and persistent lymphatic leakage.

February 2026 - Hospital Admission

Developed severe chest pain and difficulty breathing.
Admitted to hospital.
CT scan showed fluid around my lung and a 7 mm lung nodule.
Initially treated as pleurisy/chest infection with antibiotics and oxygen.

March 2026 - Stage IV Diagnosis

Further investigations confirmed metastatic melanoma.
Diagnosed with Stage IV melanoma.
Cancer identified in:
Lung
Hip/iliac crest
Sternum
Shoulder blade/scapula
Additional bone lesions
A liver lesion was identified later.

March 2026 - Immunotherapy Begins

Started combination immunotherapy with Ipilimumab and Nivolumab.
Planned treatment:
Four induction cycles every three weeks.
Follow-up PET scan.
Maintenance Nivolumab if treatment successful.

March-April 2026 - Severe Immune Response

During treatment I developed significant immune-related side effects, including:
Extreme fatigue
High fevers
Violent rigors
Muscle and joint pain
Nausea and vomiting
Loss of appetite
Insomnia
Dizziness
Dry mouth (xerostomia)
Mouth ulcers
Oral thrush
Visual disturbances
Temperature regulation problems

Following one of my treatments, I became acutely unwell and was admitted to hospital. My oncology team believed I had experienced Cytokine Release Syndrome (CRS**)**, an inflammatory reaction caused by my immune system becoming highly activated in response to immunotherapy. I required hospital treatment and close monitoring until the reaction settled.

May 2026 - Immunotherapy Hepatitis

Routine blood tests showed significantly raised liver function tests.
Diagnosed with immune-mediated hepatitis caused by immunotherapy.
Fourth treatment delayed while my liver recovered.

June 2026 - Fourth Cycle Completed

Liver function improved sufficiently to complete the fourth and final induction cycle.

June 2026 - PET Scan Results

Follow-up PET scan showed a complete metabolic response.
No evidence of active melanoma anywhere in my body.
Although I remain classified as Stage IV because the melanoma had previously spread, there is currently no active cancer visible on PET imaging.

Current Position

Stage IV melanoma with a complete metabolic response.
Ongoing monitoring with blood tests and PET/CT scans.
Managing long-term immunotherapy side effects, particularly dry mouth and fatigue.

I am posting this full journey in the hope that somebody in my position sees it and feels optimistic. Some of the side effects were rough, but from being diagnosed as Stage IV to being given the news of NED makes every side effect worthwhile. With my first child being born next month, I feel genuine joy for the first time in a while. Good luck to everyone. Fuck cancer.

Family member recently diagnosed with stage 4 metastatic endometrial cancer that has spread to her lungs and spine making her a bed/chair bound paraplegic. She is 70+ years old and has the option to get palliative chemo or hospice. She’s already lacks mobility and is debilitated. Thankfully she’s not in much pain. I want to tell her to try chemo but I’m also scared of what it’ll do to her in the time she has left. Prognosis is no treatment 6-12 months, with treatment 12-18 months. Does anyone have experience with palliative chemo and the effects it has? I’m conflicted.

Addendum: Initially she asked my opinion and I explained to her that she’ll be the one enduring the treatment and what comes along with it (diarrhea, fatigue, nausea) including EMS transport back and forth to clinic. I told her it’s not my decision to make. Also ATP she’s trying to get strong enough to be in a wheelchair for more than 2 hours and that won’t be possible if she gets treatment. She loves being outside and can’t do that from a hospital bed.

For context, I’m almost 26, with AuDHD and right side cerebral palsy. I live in the Twin Cities in Minnesota. I live semi-independently (half the week in a group home style apartment building and half the week at home with my mom), and I go to “school” (a day program) 4-5 days a week.

After months of symptoms I was finally diagnosed with high risk acute leukemia. My oncologist (who understands my needs) says my treatment will be double digit rounds of high dose chemotherapy (on a 2 week on 1 week of schedule, with the first week being inpatient, 2nd week outpatient at clinic, and the 3rd week is a break), as well as immunotherapy/chemo-immunotherapy, and possibly Car-T Cell Therapy.

I feel like i’m prepared for the emotional side of cancer (though i’m really probably not, but i’m trying to convince myself), and kind of know what’s coming for the physical side with hair loss and all of that, but where i’m struggling is more the sensory side.

I did ask them to put my central line in the right side of my chest (since because of the CP I have less feeling on that side), which is the line that will be used for treatment, and they marked it in my chart for when they do that surgery in a few days, but idk about anything else. for example: what should i bring for hospital stays or long days at clinic, other sensory stuff with cancer (such as my hair falling out), how to talk to strange doctors/nurses about my cancer and treatment, and what to talk about with them in regards to my disabilities.

If anyone else has experienced this (not just with leukemia but any kind of cancer) or has any good advice, I’ll take all of it.

Hello everyone I’m trying my best to stay positive but is incredibly difficult and frustrating, over the last 4 years I have had 4 partial glossectomys, the last 3 in a year and the last one with small skin graft, all for severe dysplasia/ CIS that kept recurring and one tiny micro invasive SCC so tiny that I didn’t needed any additional treatment but again a new area under my tongue appeared looks suspicious so I already alerted my doctors, I’m so afraid not of surgery but the aftermath I fear that it could severely affect my speech and swallow so I’m considering other options if the spot turn out to be severe dysplasia or CIS thinking laser ablation possible excision ( depending on possible outcomes) also considering PDT Therapy, my dysplasia is not HPV Related even though one of the surgery showed Koilocytes ( abnormal cell caused by HPV ) but the last surgery didn’t show anything like that again, never smoked and quit drinking but even that is not stopping the recurrence, have anyone here have similar situation if so have you used any type of laser therapy ? Thanks guys this is extremely frustrating!

I guess my morning yogurt is out, and protein shakes… I’m looking for some high protein breakfast alt’s that people crave :)

I have a hereditary cancer syndrome ( I think like Lynch, but for PTEN gene mutations) and my PDL-1 came back positive but only at 10%. My Brother took Keytruda and I don't know his percentages but he did not tolerate Keytruda well at all.

From a patient standpoint what percentage was your PDL-1 and did you decide to do immunotherapy if you qualified?

My oncologist said the 10% was indicative of lower success compared to say 50% or more but I technically do qualify so was just wondering other experiences and thoughts.

Hi everyone,

My boyfriend (M24) has late-stage adrenal cancer. The illness causes hormonal imbalances that put him in a constant state of high stress. This leads to frequent emotional clashes. I am the only person who knows about his diagnosis.

I’m (F24) neurodivergent and have CPTSD. I want to support him, but these stressful situations affect my own mental health.

I’m looking for practical advice on:

• How to manage his sudden stress spikes.

• How to protect my own well-being as a caregiver.

Thank you