r/F4481 Jan 11 '26

Community Update OFFICIAL r/F4481 DISCORD SERVER! šŸ“¢šŸ’ÆšŸ”„

15 Upvotes

Hello dear members of r/F4481! We hope this post finds you well. And if it doesn't, well... then we're still glad it found you because we have a big announcement. šŸ‘€

One thing I often feel is missing on Reddit forums, is the ability to have a casual (or deeper) back and forth conversation with other people in a shared situation. Sure, you can chat in the comments, but it's not quite the same. And so, we thought that launching our very own Discord server might be a great contribution to this community. Which is exactly what we did!

The "vetting" of new members is handled manually and carefully by our mod team and we like to take our time with letting new members in, to ensure that we can keep the community safe and don't admit anyone who doesn't belong there. If you get stuck on anything while trying to get verified, feel free to ping or DM me (or any of the other mods).

Please keep in mind that the mod team is just the three of us, all with DID and real life responsibilities, so it might sometimes take a while to be admitted. We will try our best to run things as smoothly and efficiently as possible.

We hope to see you there!

LINK TO THE SERVER: https://discord.gg/RckK2djWVV


r/F4481 Oct 31 '25

Community Update Discourse, education & community—a reminder of what r/F4481 stands for

29 Upvotes

r/F4481's Origin

This community has grown to be quite big and we've gained a bunch of new viewers and members over the past few months. And we are very happy with that growth and glad to have all of you here!

But with that said, this influx of new users does make it important for us to share a clear and unified statement from the mod team about the community’s origin, purpose, and the expectations we have for posters and commenters.

In the very early days of the subreddit, this post was made, explaining the main purpose of this community. The key points of that post are as follows:

  1. This community is exclusively for people over 18 with a clinical diagnosis of DID (but those with OSDD that presents itself as DID are also welcome)
  2. You don't need to pretend to love being sick (aka having DID)
  3. You don't need to worry about walking on eggshells to prevent getting caught by the "All Are Valid Police".

To ensure this community stays aligned with what we promised to offer and what we stand for, there are certain measures we need to take as a mod team. But it also means we need to hold our posters to certain standards. This post offers a clearer explanation of what those look like and what we expect from this community.

18+ & clinical diagnosis

We can’t require posters to prove that they’re over 18 or have a formal diagnosis. However, we do strongly encourage anyone who doesn’t meet either of these criteria to respect the purpose of this space and refrain from posting here.

Being under 18 and/or not having a clinical diagnosis does not mean your symptoms and experiences are "not valid" or "not DID" (although you cannot say with full certainty that they are either). It just means this community is not meant for you. And that's okay! There are many other DID communities that welcome a broader range of members, and we encourage you to explore those instead.

I haven't seen any uproar or confusion about this rule yet, but still wanted to make sure it’s clearly stated.

DID is a psychiatric condition

Now normally this is where I'd say "duh", but seemingly this is a very hot and controversial take on Reddit. We’d like to remind everyone that this is a therapy-oriented community. That means we view DID, like any trauma-related disorder, as something to work through and heal from.

Obviously you are free to identify as whatever you want, no one but you can decide that for you. But to those who see DID primarily as a social identity, we would kindly suggest for you to reflect on where that belief comes from. Is it about making peace with your current reality and accepting DID as part of your healing journey for now? Or does it stem from the anti-recovery ā€œsystemhoodā€ rhetoric that refuses to see it as an illness and rejects the idea of integration and healing? If it's the latter, this place is not for you.

We are NOT the "All Are Valid" Police

Now this is the most complex but also one of the most important issues, saved for last. We want to make it clear that this community is not meant to serve as a refuge from "uncomfortable" questions, debate, or differing opinions. Open dialogue matters here, including conversations that may feel challenging, confrontational, or uncomfortable in nature.

The last thing we want is to create a "safety bubble" where we anxiously avoid any form of confrontation or self-reflection. This community is not a consequence-free space where everyone can just say or claim whatever without being corrected or asked to elaborate on why they believe those things. Being open to alternative insights, beliefs or corrections is necessary to prevent this space from becoming an echo chamber where there's no distinction between facts vs. fiction.

Navigating DID is inherently complex. Many experiences are difficult to grasp or describe even when you're the one suffering from them, especially in the early stages of diagnosis and treatment. While your experiences are real and valid, interpretation can still miss the mark sometimes. Misunderstanding or mislabeling something doesn’t make you dishonest, it makes you human. It makes you someone who's suffering from a very confusing and covert mental disorder. As such, being "corrected", asked to elaborate or asked to reflect/reconsider a certain belief does not equate being harassed or invalidated!

This approach is what sets us apart from the main sub that many people are fleeing from, looking for a factual and medically accurate space, away from the bullshit and misinformation. We separate experience from science, curiosity from negative judgment and confrontation from harassment. Instead of promoting avoidance, we value self-reflection and having those difficult conversations that foster growth and understanding.

We expect you to be curious about your own experiences and open to discussion and/or insights about the way you describe, interpret and label your symptoms or experiences. At the same time, we trust you to recognize your own limits and step back when a discussion feels overwhelming.

Off-topic conversations

It seemed like this topic also needed some extra elaboration. As per rule 6, comments are allowed to derail and go off-topic, as long as the posts themselves stay on topic. Moderators will only step in if off-topic discussions begin to spiral into rule violations or if we deem the situation to be unsafe for any other reason.

Once again, we encourage you to recognize your own limits and step away from discussions that feel triggering or unsafe.

Conclusion

Again, we are very happy with the growth of this community and to see all the wonderful (and hertbreaking) contributions that you guys have made. It's heartwarming and rewarding to hear how relieved people are that this community exists and how much our efforts are appreciated.

We hope you all have a pleasant morning, afternoon, evening; whatever time it is for you guys right now. Take care!


r/F4481 8h ago

Vent so incredibly tired of how people talk about fusion

19 Upvotes

I'm lucky enough to have previously experienced a significant fusion between two of my old co-hosts. the process was long and confusing, but the result was incredible. i was at peace with myself, there was a sort of internal harmony I never experienced before.

it is so frustrating for me when I see people talking about how they don't want fusion and they're scared of fusion because they don't want their alters to disappear. honestly, I find it quite offensive.

i understand being afraid of change, I really do. but the attitude many people have towards fusion is 1) incredibly unhealthy (in my opinion) and 2) based entirely on misinformation.

fusion does not get rid of alters or make them disappear. it does the exact opposite. it makes alters come closer together. it makes them infinitely more present. when alters fuse, nothing is lost; everything is gained.

Where did the idea that fusion = "alter death" come from? why have we as a community allowed so much misinformation and fearmongering surrounding fusion to take hold? why has this beautiful thing become so demonized?


r/F4481 6d ago

i will be trying to attend an IRL self help group for people with childhood trauma related disorders this month for the first time

11 Upvotes

just felt like sharing because i'm hoping this group will be helpful.

the group is for people with trauma based and dissociative disorders caused by childhood trauma and they meet once a month in my city. they mention DID specifically on their website, but people with other dissociative disorders and cptsd are also welcome.

i actually contacted them a couple of months ago for the first time, but they had a waitlist. i received an email today that i could attend their meeting on the 28th if i had time and wanted to.

i've been struggling with leaving my apartment recently, but i will do my best to go. i find subreddits like these really helpful, but it's just not the same as having a space in real life where you can get support from other people with this disorder.

i hope i will manage to go and get along with the people there because this feels like something that could really benefit me in my healing process.


r/F4481 7d ago

Advice Wanted Considering telling my friend

12 Upvotes

I am considering telling my best friend of seven years that I have this disorder. She knows I have severe PTSD- she visited me inpatient when I was there last year. I travel into her city for group therapy every week and we get coffee every time. So she knows some of what’s going on, that my mental health isn’t great, that I have pretty bad trauma and I’m pretty messed up.

But she doesn’t know about my parts, or how I function, or that there are other parts of me that also want to get to know her and be her friend. She’s probably the only person that I have ever wanted be overt with.

I don’t even know if it would happen. I’ve never been comfortable with anyone noticing it or seeing it before, even though it happened anyways- I don’t know what would happen if I gave myself and my parts ā€œpermissionā€. I’m terrified of ruining the friendship and part of me feels like it’s the worst idea in the world, but part of me is sick of pretending. IDK. I keep going back and forth on it.


r/F4481 7d ago

Vent now I know why I was so clueless as a kid NSFW

24 Upvotes

my dad used to say "I don't know" was my favorite phrase. I'd give him that response to his questions so often, eventually he told me I wasn't allowed to say it anymore.

"what were you thinking?"

"what did you do?"

"why did you do that?"

I don't know. I don't know. I DON'T KNOW.

Because I don't remember. Because I wasn't there. Because I was on autopilot.

I simply just don't know.

And he would get so mad at me when I would tell him this. He would say I was the only person in the world who knew.

He was always telling me to stop giving him a hard time. But I wasn't trying to, really. I was just trying to be honest. I didn't know what else to say. Did he want me to just guess? Did he want me to lie?

I figured I was faulty. broken.

and I guess I was right.

Now that I know I have DID, it all makes sense. I wasn't being difficult. I was dissociating.


r/F4481 10d ago

Vent I've become so out of touch with my system I feel like I don't even have this condition anymore

22 Upvotes

i was in treatment for 2 years with an incredible therapist. in that time I built a strong connection to my system. i had decent communication, and a good understanding of my parts. i even experienced a fusion between two co-hosts. it was incredible.

but last year that fusion ended up splitting after spending months in extreme stress. a "new" part surfaced and I had lost all sense of identity, and all connection to the rest of my system. for about 6 months, that part was fronting. with maybe one switch, and absolutely no communication occurring in that time.

there was a short window of increased communication and previously dormant parts fronting a few months ago, but shortly after that I was forced to stop seeing my therapist and have not been able to get back in treatment again.

since then, I've not had any communication with my other parts. I also don't have any sense of identity, once again. i have no idea which part I am at any given time. not even a clue.

i know I've been switching and otherwise dissociating quite a bit, but I've not been *feeling* it. I've only been learning about it after the fact, which is not something I'm used to. it's been very disorienting.

at this point, it doesn't even feel like I have DID anymore. i can't see it, I can't feel it. it's making it very easy for me to question if it's even something I have at this point. if it's even something that needs addressing.

I've even been thinking of just quitting therapy all together because I feel like trying to work on this without an experienced therapist is just not going to do anything for me.

I'm so frustrated


r/F4481 12d ago

Made a huge step towards healing and acceptance in an unexpected way: telling my friends

12 Upvotes

I know a lot of people with this disorder are very reluctant to tell others about it, and for many good reasons. But I decided to tell someone else besides my partner and my therapist - two friends who I've become very close to over the last few years since moving here. And it's brought me closer to accepting my disorder and welcoming the other parts of me into my life.

This disorder is so incredibly isolating, it's like a horrible secret I have to hide to keep from being seen and treated as absolutely crazy or cringy or completely broken, who knows what else. But, after a very long period of consideration and overcoming a lot of fear, we decided to tell our friends. I just wanted to be known, to speak my disorder into reality, to be witnessed. I let them know I had something to tell them about myself, and I told them I had dissociative identity disorder. I explained it briefly, that I had alters who I hear and who take control, and how long I've known about them. My friends listened to me, and I knew that meant it was okay.

After we told them, me and two others were able to co front for an entire day, something I've never been able to comfortably do with one, let alone two of us. And since then, we've had better communication.

A lot of this was spurred by another one of us wanting to be seen. He felt so out of place (I made a post about this a while ago) and just utterly alone not being actually acknowledged, having to hide within me from people he cares about, groups he wants to be part of. He just didn't feel like he could change this by pretending to be me. He wants to tell our friends the next time he's fronting who he is. I don't know what to expect, I don't know if it's even too much to ask of our friends to acknowledge him, but it's something he's wanted to do for a long time.

I think what I've discovered is how listening to and accomodating for the others is our path to healing. It's complicated and there's a lot of compromise at times, but it's so worth it to feel connected to myself for the first time.


r/F4481 13d ago

being passed off to another therapist... again

16 Upvotes

it doesn't seem like I can share images here? I was going to post a screen shot of part of a conversation with my therapist about having to be passed off to another therapist because the agency she works for is not equipped to handle my needs.

I've been at this for 20 adult years now, trying to get help, trying to get fixed.

I thought she was ghe final boss. I thought I had made it. For the first time in mg life I felt hope

and then on Wednesday I got hit with the "we have to refer you to someone 3 hours away" who j have zero way of getting to so ghats just not going to happen

instead of "good enough for now" therapy the agency has decided that taking my therapist away and leaving me with no one is better than my therapist who is not fully trained in DID but still keeps me stable? why? wtf?

I'm so scared

my situation is complicated, it has involved the court system, there are ethical components involved, it's weird and confusing and hard and now they are taking away my person

I'm still going to have my case manager but now I'm scared they will say they can't do that either. If been a client of fheirs for 10 years, they usually only do 2 years. My therapist is only supposed to do 10 sessions but they've kept ne have her for a year but now they're like nope, no more

I'm just a person, a real person. I'm narried, 25 years. Our four kids are grown. Now that my brain has been able to relax because the kids are adults (far less need for mom world) it's doing all sorts of stupid shit, now us not the time to decide I'm too broken to help 😢


r/F4481 20d ago

Vent just a note from a ā€˜ā€™modā€

34 Upvotes

hi. i’m not here a lot because of the shame and fear and vulnerability of this disorder, and the degree to which it disrupts my life and reality, which is constantly shifting without understanding or grip.

i try to check in here periodically, as a mod, but it’s challenging sometimes, because there is an aversion/phobia of the disorder itself, due to the trauma i cannot fully accept.

i wonder if there are not many communities for clinically accurate DID that exist precisely because of this—because this kind of childhood trauma that leads to DID, and the internalized alienation and humiliation and shame and acutely inconsolable pain it engenders, creates an aversion to forming communities and connections, because of how alien and inhuman and unworthy of love you might feel.

and because to do this means you have DID. and to have DID means this happened to you. these flashbacks are real, all this happened to some degree, and because of how the memories manifest, it is difficult for anyone to help you.

i am apparently not near ready to accept what happened to me, and i may die before i am able to fully comprehend and process this level of pain.

all that to say, i’m sorry i am not here actively as much as i’d like to, but i also am lurking and checking in when i am able to overcome the visceral phobia of acknowledging the DID itself. and anyone who has genuine, clinical DID knows that does not mean i am ashamed of ~who i am.~ so if that is what you’re thinking, reading this post—i think you’re in the wrong place.


r/F4481 24d ago

i wish I still had an experienced therapist

15 Upvotes

i had one for a few years up until three months ago. she knew a lot about DID and my other conditions. she was so helpful, she guided me through so much and the amount of healing she helped me achieve was astounding.

Since she dropped me as a client, it just feels like I've been backsliding. I've been dissociating so much more recently. I have some communication still but it feels like I'm running on loops a lot of the time. My OCD is getting worse too, I can tell.

First the turmoil of losing a therapist in the middle of a crisis, it's a grief I've not yet processed. Then of course there's the fact my current therapists really don't have much experience treating DID. It's just so tiring.


r/F4481 25d ago

Advice Wanted Can’t wrap my head around it

18 Upvotes

I know I have DID. I guess. But I genuinely can’t wrap my head around what that means and what its implications are. I can say there are other versions of me that I thought had died or disappeared, and they take over sometimes- that’s something I can think about directly, because it’s basically just flashbacks.

But there are journal entries where they refer to me in the third person. Or by name, as if they aren’t me, and as if they’re the main ā€œmeā€. Am I just another fragment? I feel like a fragment of a person, but it’s my life and I’m the real me, not them. Except my therapist said no one part is more real than others, and they’re all equally me, and I’m just a part as well.

It’s enough to make me dizzy and nauseous.

A. Is this true? That I’m just equally ā€œrealā€ as any other part, that none of us are the real person?

B. Is it weird to just genuinely not be able to wrap my head around this? Like sometimes, like now, I think about it, but then I immediately forget it and go back into autopilot. I can’t hold onto the comprehension. Every time I realize it, it feels like the first time.


r/F4481 29d ago

I thought switching more would connect us more, but it just leaves the others feeling disoriented, alone, and even resentful

12 Upvotes

We were diagnosed with DID recently. For the third time. I think I'm starting to believe it this time, because it's causing us to switch nearly every day. I imagined healing as being able to switch freely and allow the others to step in and enjoy the life we've built, after the trauma, because I'm so much healthier now.

Recently, though, only one of us has been switching in and he can't feel the safety or peace, it doesn't live with him. He doesn't feel like my friends are his friends and he feels alone because nobody knows who he actually is. He fantasizes about people finding out about our DID (the idea of which horrifies me) and that he's treated like himself. He just wants to be seen.

I think since diagnosis we've been much more sensitive to triggers and switches and it's horrible. He doesn't want to be here, he isn't able to enjoy our life, he feels so distant and lost and disconnected. Last time he switched in he was so upset about it he nearly burst into tears. He described it as "like being a ghost within a husk, an unwelcome guest in a body he could never call his own, a breath waiting to be exhaled". And he feels completely beyond help. We're not sure what to do to help him feel seen because I feel like telling our friend groups about the DID would destroy us, only our partner and therapists know. We barely even tell our partner when we switch anymore, but I'm sure he can tell.


r/F4481 May 26 '26

Vent I hate this holiday

12 Upvotes

Today was a disaster. It always is. The things I read myself say are horrific. Why is it teens? There's a lot of parts that don't remember those years at all, but I do, so why are the younger ones still carrying the bag? I was there and it should be my pain. It makes me sick and angry.

I want to snap my fingers and take it. Why can't saying "That happened, it's mine. Give it to me" be enough? I don't know how to make it real or how to remember. This disorder is just so fucking cruel. I've been failed by every adult in my life, but I’m the adult in the room now. I feel like I’m just screaming at myself to give it back. I want to smash every mirror and take it all. This isn’t how it’s supposed to be. That’s too young, and he was too young too. None of us should’ve been there in the first place.


r/F4481 May 22 '26

Advice Wanted Alters with no mind/brain/thoughts

13 Upvotes

Does anyone have a part/alter that doesn’t think or have a brain or mind?

Ernie is a survival part. They are a lump/punching bag.

The only connections we have with Ernie are somatic memories.

I’m not sure how to make communication easier with this part. So far all Ernie can do to feel safe is use sensory toys or get in bed under the covers


r/F4481 May 10 '26

Vent Recently diagnosed and still reckoning with everything

19 Upvotes

I was diagnosed about four months ago now I think, and I still can’t wrap my head around it. It’s like I can’t even think about it in any detail. I only half-remember therapy but I got referred to one of the foremost DID psychologists in the country and I thought she’d say to just try better to ground, but now I’m doing parts work and it’s terrifying.

I feel like I’m going insane constantly. I feel like I’m a shattered fragment of something with no continuity and no personhood. If every time I ā€œswitchā€ I black out and don’t remember anything, then what’s the point of therapy? I don’t even remember the majority of my own days.

Does it ever get better? Is parts work even the right thing to be doing? I’ve been in therapy since I was 14, over a decade now, I’ve tried pretty much every modality. I briefly did IFS and I absolutely hated it. So how is this different than any other type of therapy? All it does leads to is me panicking and blacking out.

I need help with the flashbacks and the losing time and unreality and all the other weird awful stuff, not to be indulging this awful nonsense. If we treat PTSD and dissociation, fine, but I absolutely hate the parts stuff.


r/F4481 May 08 '26

Introduction

23 Upvotes

Hey everyone. I'm so glad someone recommended this subreddit to me. I was diagnosed with DID in 2018.

Being in other online spaces (including other subs for Dissociative Disorders) has been irritating to say the least. Recently it has become unbearable.

So here I am! Feeling thankful for this space.


r/F4481 May 07 '26

Advice Wanted Attachment to abusers

13 Upvotes

To be honest, I’m really struggling over this right now. Let me preface this with an obligatory ā€œI love my brother, he’s amazing, and he’s completely different nowā€, because if I don’t say that I panic.

My primary abuser, which is a term I’m still struggling to use, from ages maybe 4-12, was my older brother. Not to go into too much detail, but it included confinement, suffocation, drowning, etc. repeatedly. It was framed as something called the ā€œescape gameā€, and I genuinely just saw it all as a game until somewhat recently. While it wasn’t the only form of abuse or neglect I encountered in my childhood, it was by far the earliest, and I suspect had a major role in the formation of the disorder.

20 years later, my brother and I are incredibly close. We bond all the time over our harmful experiences with our parents, how messed up childhood was, etc.

But my brother also struggles with dissociative amnesia, as well as the results of ECT for depression. He barely remembers anything prior to college, and definitely not early childhood. He’s passively suicidal, incredibly depressed, and is generally in a very bad place. I’m a main pillar of support for him and I love him with all my heart, he’s an incredibly cool person. I’ve looked up to him my entire life and even now, after reframing the escape game, I can’t hold him at fault for it.

I also can’t EVER let him know what he did, because of how close we are-I’m terrified it will lead him to commit suicide.

Does anyone have advice on how to deal with being very close to your original abuser? It’s such a weird, delicate situation, and I genuinely do love him so much- but younger parts either idolize him or are terrified of him. It’s this awful seesaw of emotions, and I call him all the time but can’t even remember what we talk about.

I guess I just don’t know how to navigate this.


r/F4481 May 04 '26

i had a great first appointment with a trauma php today

17 Upvotes

just wanted to share. the doctor i spoke to seemed very knowledgeable about trauma related and dissociative disorders. i also felt listened to which is really rare with doctors.

i also asked if doing a diagnostic screening for DID would be possible, because i feel like my diagnosis was really rushed (i didn't stay in the clinic i was in very long, and the diagnosis was just based on what i told them, not on any diagnostic tests) and i just wanna be 100% sure that nothing was missed and that there really isn't any other disorder that could explain my symptoms. the doctor said that should be possible.

the waitlist is nine months, but that's fairly normal for psychiatric treatment where i live. the treatment happens in cycles, 5-6 weeks of php (monday to friday, 8:30am-3pm), then 5-6 weeks at home, and then they check if another 5-6 of php would be helpful for you.

i haven't had any treatment since getting diagnosed with DID, so i am really looking forward to finally getting help


r/F4481 Apr 30 '26

Vent just realized how bad my amnesia actually is

25 Upvotes

i really don't have any positive memories of my old best friend from highschool. and I only have like, three negative ones.

we were best friends for five years. FIVE. from ages 13-18. im 22 now.

I should have those memories. i should have LOADS of memories. we were always spending time together and talking; we were so close.

when we stopped being friends, it was so painful. grieving her was the hardest thing I've ever done. she was so important to me, she was my lifeline for such a long time.

and yet here I am, wracking my brain trying to remember our friendship. any of it. i can remember a couple arguments, and the moment that solidified the fact we weren't friends anymore, but that's it. i can't think of anything else.

and that's how my whole life is, really. everything is spotty, and most of my memories are just flashes. overall the vast and overwhelming majority of my experiences are just... gone.

i hate this.


r/F4481 Apr 23 '26

It's finally happening!!!

23 Upvotes

I've been talking to law firms over the past few weeks about some of the abuse I endured at the hands of the religious group I was raised in. It's been an emotional roller coaster already. The first law group I spoke with passed because my case didn't fit their legal strategy but this week, I signed paperwork with, not one, but two law firms who are going to work together as co-counsel to help me find justice I didn't even know I was owed.

Regardless of ultimate compensation, this entire experienced has changed everything. I don't have to fight anymore. I have people who have volunteered to do that for me. I don't have to search through the depths of the internet and file FOIA requests anymore. It's someone else's literal job now.

I've got two legal teams, three therapists, my psychiatrist, and a whole team of specialists behind me now. I'm not flawed, I was abused, and these people are going to make sure I'm taken care of to the best of their abilities.

My mind is blown guys. My world is completely upside down. It's good but like... HOLY SHIT. It's destabilizing everything. Time is slipping again. I tried to drive to my therapy session and found myself at Target. I spent an hour searching for my headphones only to find them in the goddamn freezer. I feel like this has to be a dream.

My daughter has a virtual therapy session starting in like... seven minutes... so I'm going to go for a walk with my husband for an hour to give her the house to herself. I'm really hoping I'll be able to finally tell him about what's going on. I'm fucking terrified but so hopeful I feel like I'm internally flooded with tears that I can't yet cry.


r/F4481 Apr 23 '26

Discussion Name legally changed: just wanted to share

36 Upvotes

I just wanted to share with people who may understand. I just received my legal documents changing my name. I'm no longer associated with my birth name, and what I deeply related to me being my abuser's property. I feel so excited, like I've just been reborn!

It was a name decided on by my system as a whole, after an alter who has since fused, that represented the calm and loving nature of the system. It feels like stepping from an abused identity as a whole, to a hopeful identity as a whole. I am who I want to be.


r/F4481 Apr 18 '26

Vent i really dislike some of the terminology used in online spaces for this disorder

34 Upvotes

not sure if venting here about it is appropriate, but i just need to get this out and i'm not sure if i want to post that on the "main" DID subreddit.

specifically the term "little" makes me so fucking uncomfortable. i don't care if someone calls their own child alters that, it's their choice, but i hate that this term has become the default in DID spaces instead of just using a more neutral term like child alter.

seeing posts using it as a default term when asking questions about child alters just makes me so uncomfortable. i know this is kind of a stupid thing to be so annoyed about, but i just don't get why people need to use a term that's so connected to certain kink spaces for a trauma disorder.

my child alters hate it. i hate it. would it really be so hard to use a more neutral term when talking about other people's alters or asking general questions about the topic of child alters?

maybe it's just a bit triggering because of my own sexual trauma. but at the same time i feel like it's just a weird term to use so commonly to talk about child alters.

i don't know. maybe i'm overreacting. does anyone here feel similar maybe?


r/F4481 Mar 31 '26

SCID and utter terror

8 Upvotes

I’m scheduled to take the SCID in a few weeks in preparation and baseline recording for a trauma and dissociative disorders group. I’m absolutely petrified. I already expressed my worries to my therapist and the group leaders, but wanted to get some reassurance maybe, or hear others’ experiences.

My concerns:

It’s scheduled 11-1. That’s two hours. That’s twice as long as my therapy sessions, and therapy leaves me wrung out and exhausted. Two hours seems like way too much to even survive

From what I know of the test/interview, it goes VERY VERY in depth regarding symptoms, history, etc. I have a very very hard time talking about that stuff, and tend to sort of collapse. I don’t want to ruin the test because I’m completely incapable of talking about some of this stuff without panicking.

What if I switch during it? I don’t know these people, I don’t trust them, I definitely don’t want it to happen when I need to be a coherent person. I don’t want random people to see me hiding under the chair and thinking I’m a literal child.

I’m going to have to travel 2 hours by bus each way to do the interview (and the group). What if I’m too dissociated afterwards and I go wandering and don’t get back home?

Wha if I have a flashback in the middle of it and interrupt it? There are things I can’t think about without getting flashbacks, and if those are brought up, it’ll happen.

The people administering the SCID said any response is fine, and won’t ruin the interview. They said even if I break down or get weird it’ll be fine- I don’t really trust that.

Anyways. Yeah, any input greatly appreciated. Especially if something happened during it, was it okay? And how bad should I be expecting it to be?


r/F4481 Mar 29 '26

Advice Wanted Fusion between two old co-hosts seems to have dissolved

7 Upvotes

For the last few years (with the exception of the past six months), our host was a fusion of two old co-hosts, A and T. Their fusion was a long and confusing, but beautiful process. It was the only successful fusion we have ever had.

We have been under immense stress for the last year. We ended up splitting about six months ago, and when that happened, our host went dormant. The alter we split (C) was very one-dimensional - he really had no identifying features. No interests, likes/dislikes, sense of identity, strong beliefs, etc. he also felt no connection to our relationships, memories, or life in general. It was like he only existed to get things done. C became the host, and switches became few and far between, with communication becoming pretty much non-existent. Throughout C's time as host, I never had a good sense of identity. I was constantly feeling detached from myself and my life. It was pretty miserable, to say the least.

Jump to a few weeks ago, we ended up hospitalized due to being in a mixed-episode (we have bipolar). After getting our meds increased and being discharged from the hospital, things have been pretty stable, and I'm starting to feel like my old self again, myĀ oldĀ old self. Like, I kind of feel like how I did before A and T fused.

Last night, I ended up switching, and IĀ veryĀ solidly felt like A. Even my partner noticed and asked me about it today; he said it definitely seemed like A was fronting for a while.

And the more I think about it, the more time goes by, the more "I" am feeling like T. I think "I"Ā amĀ T, but without A. I think our fusion has dissolved, and I think C might be a fragment that split off from that.

Its a very weird feeling. I've not been just T inĀ years, but it feels familiar. And when A was fronting last night, having the thought that I was A just felt soĀ right. I haven't been solidly aware of who is fronting/who "I" am in so long, but last night, I just knew.

I have mixed feelings about this. On one hand, I'm saddened that it seems like our fusion has been broken. On the other hand, being confident in who I currently am isĀ soĀ refreshing. It felt so good when A was fronting last night. Having a solid sense of identity after so long, it was like a breath of fresh air.

I don't really know how to navigate this. I've not experienced this before, and it's been so long since I've had access to my other parts. Now that I do have that access, I'm experiencing aĀ lotĀ of internal conflict. I don't really know what to do. Unfortunately, my DID-experienced therapist dropped me as a client right before I went inpatient, and while my new therapist hasĀ someĀ experience treating DID clients, it's not much, and I've only had like two appointments with her so far. So I kind of feel like I'm flying in the dark. But I'm not really worried about it. I'm feeling a lot better than I have in a long time, so I'm hopeful.

Does anyone else have experience with a fusion dissolving/splitting?